Akshaya's Hospital Adventures

Medical procedures and treatment

1. scope 2 times. 2018 and 2022

2..ultra sound. 2023

3. mri 2023 brain scan 

4. blood transfusion 2023

5. drip

6. antibiotics iv and oral

7. rectal foam

8. incision and

9. wound dressing

10. steroids. iv and oral 

11. needle in open wound 

12. iv plug left hand right hand 

13. blood tests 

14. finger prick 

15. physio therapy

16. therapy! 

parenting ashwin

yesterday morning i took a deep breath and said I'd breathe life and kindness ro my children, and i turned ashwin's day around by joking with him and all. 

but by 5pm I lost it and yelled at him so much.  and again at 8pm. I feel awful.  I need my spirit giving spirit to last the whole day especially when he acts up. how do I calm him down in a middle of a melt down. and teach him things well. he's getting to that stage where he doesn't want to do things for others gets very impatient if things don't go exactly his way and all. I get worried seeing that but yelling at him may not help. please help me God. 

daft

I feel awful 

in tending to 1 kid I ignored the needs of the other

I should have told ashwin more firmly that he cannot snack after the play before hand

After the play he was a little kid and wanted to eat so badly and she suggested macs and we went

but it triggered for her how different her life is 

and she couldn't sleep till 1 plus. 

neither could  I. but I deserved it

sigh 

she said she feels so angry like she wishes she could smash things 

has quite awful mood swings. hoping it was due to stopping of steroids and not something new for her

one day she went to the canteen and felt really sad 

ashwin felt quite bad about making her sad. Guess he won't ask for food when she is around anymore. 

I'm not sure what to do

can we even manage 

perhaps we should not travel end of the year. 

I'm so scared

and I feel like giving in. 

telling her we can buy those fries if she wants.  

and so scared of my weakness

sham and kannan they never eat out. wish I could get the kids to be like that too.  

so many fears and dreams

so many fears and dreams and thoughts about my little man ashwin

I love him

he is a light in this world who doesn't know his own brightness 

I feel I can and should help him more

First is to help him get a grip on things and not be so certain he has made a mistake 

help him be more organised about when things are due so he is not working in blind panic all the time 

work in his breaks properly